CENTRAL EASTERN EUROPEAN PATIENT ALLIANCE OF HEMATOLOGY /CEEPAH/ aims to unite the knowledge, experience and strength of patients’ leadership in the rare hematology disorders on local, CEE level. To improve the access to treatment, level of care and quality of life for patients with rare hematology disorders, malignant and non-malignant. CEEPAH involves Thalassaemia and other rare anemias, Chronic myelogenous (or myeloid) leukemia (CML), Myelodysplastic syndrome (MDS), Myelofibrosis, Paroxysmal nocturnal hemoglobinuria (PNH), Hemophilia and other hematology disorders.
CEEPAH will operate in the following countries: Slovenia, Croatia, Serbia, Romania, Macedonia, Bulgaria, Albania, Monte Negro, Bosnia and Herzegovina, and Turkey. CEE area has its’ specifics, difficulties and requires purposeful approach.