CENTRAL EASTERN EUROPEAN PATIENT ALLIANCE OF HEMATOLOGY

Начало News Global Iron Summit 2015

Global Iron Summit 2015

Based on our experience, representatives of CEEPAH were invited to participate in Iron Overload Patient Organization Advisory Board Meeting. The meeting took take place in Berlin on the 15th and 16th March 2015.  Patient organisations representatives of Thalassemia, MDS, Sickle Cell Disease and other Rare Anaemias from across Europe attended the meeting to exchange patients’ experience of taking iron chelation therapy, the compliance and the reasons for non-adherence to iron chelation therapy. The meeting was rich on discussions, ideas and proposals for different tools and ways  that could help patients adhere to iron chelation therapy.